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Popular Forum Topics

What's the best way of telling someone you have an ostomy?

Hi there, I need some advice please...I've been going to my local nightclub for 5 years, I guy who's also gone there all that time (and longer apparently) is suddenly showing an interest in me. He's very shy, quiet and hardly talks to anyone but his close mate, they're both bachelors, it was my new 'hairdo' (my wig since hair loss due to low dose chemo for my crohn's) that did it, they were lightheartedly arguing whether it was me or not! I started chatting to the quiet guy, I've only ever said ...


Views: 1129 Replies: 12

Ostomy diet

Is there such a thing as an ostomy diet? I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite. Last year I was in hospital with what they thought was a partial small bowel obstruction. My "diet" has been small amount of baby oatmeal and some coffee at breakfast: maybe cup of soup for lunch. Small amount of yogurt, jars of baby fruit. I tried to eat small amounts of well-cooked green beans with the carrots today. I've tried to dri...


Views: 512 Replies: 10

Is it possible to be regular with an ostomy?

Hello Everyone! Is it possible to become regular with an ostomy? My dr told me to drink Citrucel everynight to become regular. I find its all day long, Is it possible to train your colon?


Views: 727 Replies: 11

Recycling ostomy bags???

Has anyone ever heard of cleaning ostomy bags after use? I am all for recycling, but I am also concerned about the health risks.


Views: 904 Replies: 15

Disposing of an ostomy bag at a friend's house

I have an ileostomy and i like to use closed end pouches and change them twice a day. I can carry an Ostaway Bag (black, thick, zip-lock) with me and keep a fresh closed end ostomy bag with me in my pocket. Often when I am at someone's house i need to dispose of one bag and put on a fresh one. I really prefer using the closed-ended pouches and i know there isn't any smell if they are put inside the black, thick, Ostaway Zip-Lock Bag. My question is; do you think it is o.k. to throw this in s...


Views: 1273 Replies: 9

Naming my ostomy

I never thought of naming my stoma. I guess by now I would have to call it "old timer" as I have had it for 40 years now.....


Views: 575 Replies: 6

Collection of tips from people with an Ostomy >>


It Happened One Night

by Theresa Murphy; via North San Diego County (CA) Ostomy News; and Chippewa Valley (WI) Rosebud Review

This article is provided to JDBS courtesy of Stillwater-Ponca City (OK) Ostomy Outlook and is Copyright by Stillwater-Ponca City (OK) Ostomy Outlook

While this page contains only a sampling of articles from the Stillwater-Ponca City newsletter, anyone who would like to receive the complete Ostomy Outlook newsletter electronically (in PDF format) may do so by emailing a request to the OstomyOK webmaster (who is also the Stillwater-Ponca City newsletter editor).


From Stillwater-Ponca City (OK) Ostomy Outlook Nov 2003:

It's been 25 years since I had ileostomy surgery and more than 20 since I had a blockage. Not a bad record -- I'll take it! Alas, I slipped up recently and ate my lunch in too big a hurry, and worst of all, I had not been getting enough fluids for a couple of days when it happened. Yes, a blockage.

Throughout the evening, I tried the usual home remedies: warm bath, drinking hot tea, massaging the abdominal muscles, and several others of the suggestions that come from our ET nurses, but to no avail. Finally, I had to decide whether to continue these home remedies or go to the emergency room to get help before things got worse. Yes, of course these things happen at night, not during the day when you could get help from some source other than the ER. So, at 11 p.m., I was describing my symptoms to the ER admitting desk receptionist. Four hours later, with the aid of a shot to completely relax the muscles and small bowel, I went home painless and with a functioning ileostomy. No surgery, no overnight stay. Whew!

The reason I bring up this experience is to point out several things that all persons with any type of ostomy should incorporate into their care. I have read these admonitions for years and have advised new patients in visits and in our monthly support group meetings to do these things. I did them in my early years as an ostomate, but have failed to follow these important guidelines as my ostomy experience has matured. I paid the consequences that night recently, but have set forth to do all of them from now on.

  • First, chew all foods thoroughly; avoid rushing through a meal.
     
  • Drink plenty of fluids all through the day, every day. Keep an extra change of your pouching system packed and ready to go -- you know, the one you carry around with you "just in case." You will even need this change if you go to a hospital.
     
  • Keep a written description of your pouch-changing procedure and the product names and numbers for your favorite pouching system. Include a description and any particulars of your physical condition which may be needed by healthcare professionals. Example: "Total colectomy with end intestinal ileostomy; rectum closed; no rectal temperatures; must wear pouch at all times; no irrigations (except for lavage performed on the advice of a colorectal surgeon or ET nurse)." Should you become separated from this written description, you need to be able to tell the healthcare professionals what you have.
     
  • Don't assume the healthcare professionals will know all they need to know just by being told you have an ileostomy.
     
  • Establish yourself as a patient with a highly qualified colorectal surgeon, even if you are many years post-surgery. Put the surgeon's name and phone number on your written information.
     
  • Establish yourself as a patient of a qualified ET nurse. Just as you still have need for a surgeon to call on, you also have need for an ET nurse to call when you need management advice.

 

 

     

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