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Popular Forum Topics

What's the best way of telling someone you have an ostomy?

Hi there, I need some advice please...I've been going to my local nightclub for 5 years, I guy who's also gone there all that time (and longer apparently) is suddenly showing an interest in me. He's very shy, quiet and hardly talks to anyone but his close mate, they're both bachelors, it was my new 'hairdo' (my wig since hair loss due to low dose chemo for my crohn's) that did it, they were lightheartedly arguing whether it was me or not! I started chatting to the quiet guy, I've only ever said ...

Views: 1129 Replies: 12

Ostomy diet

Is there such a thing as an ostomy diet? I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite. Last year I was in hospital with what they thought was a partial small bowel obstruction. My "diet" has been small amount of baby oatmeal and some coffee at breakfast: maybe cup of soup for lunch. Small amount of yogurt, jars of baby fruit. I tried to eat small amounts of well-cooked green beans with the carrots today. I've tried to dri...

Views: 512 Replies: 10

Is it possible to be regular with an ostomy?

Hello Everyone! Is it possible to become regular with an ostomy? My dr told me to drink Citrucel everynight to become regular. I find its all day long, Is it possible to train your colon?

Views: 727 Replies: 11

Recycling ostomy bags???

Has anyone ever heard of cleaning ostomy bags after use? I am all for recycling, but I am also concerned about the health risks.

Views: 904 Replies: 15

Disposing of an ostomy bag at a friend's house

I have an ileostomy and i like to use closed end pouches and change them twice a day. I can carry an Ostaway Bag (black, thick, zip-lock) with me and keep a fresh closed end ostomy bag with me in my pocket. Often when I am at someone's house i need to dispose of one bag and put on a fresh one. I really prefer using the closed-ended pouches and i know there isn't any smell if they are put inside the black, thick, Ostaway Zip-Lock Bag. My question is; do you think it is o.k. to throw this in s...

Views: 1273 Replies: 9

Naming my ostomy

I never thought of naming my stoma. I guess by now I would have to call it "old timer" as I have had it for 40 years now.....

Views: 575 Replies: 6

Collection of tips from people with an Ostomy >>

My ABC’s of ileostomy hints, tips, etc.

by Lisa Andrews, Fayetteville (GA); posted on the UOA General Discussion Board; July 5, 2004

This article is provided to JDBS courtesy of Stillwater-Ponca City (OK) Ostomy Outlook and is Copyright by Stillwater-Ponca City (OK) Ostomy Outlook

While this page contains only a sampling of articles from the Stillwater-Ponca City newsletter, anyone who would like to receive the complete Ostomy Outlook newsletter electronically (in PDF format) may do so by emailing a request to the OstomyOK webmaster (who is also the Stillwater-Ponca City newsletter editor).

From Stillwater-Ponca City (OK) Ostomy Outlook July-August 2004:

Editor’s note: This list of tips was posted on the UOA Discussion Board by Lisa Andrews, who is also the 2003 winner of the Great Comebacks Award sponsored by ConvaTec and the Crohn’s & Colitis Foundation of America. As indicated by the word “ileostomy” in the title, some items in this list (especially “J” and “L”) are specific to ileostomates, but many of the others can be helpful—or inspiring—for any ostomate.

Hi everyone – I thought you might enjoy this list I put together of ileostomy hints, tips, etc. Everyone has their own ideas and what works best for them, and here are some of mine I put in A-B-C order. Enjoy!
— Lisa

Always be thankful for your health!

Be patient with yourself as you learn ostomy care – it takes time to adjust after surgery.

Change your appliance in the morning before breakfast, and take your shower with the appliance off. You can wash the skin, and soap & water won’t harm the stoma.

Drink lots of fluids during the day.

Empty your pouch before exercising, bathing, or going to bed.

Find the pouching system that you are comfortable with and have confidence in.

Groups like UOA chapter meetings and CCFA support groups are very beneficial and informative.

Hydrogen peroxide makes a great, inexpensive pouch deodorizer. Just a squirt in the pouch after emptying and before attaching the tail clip eliminates odors.

Irritated skin can occur; if it lasts more than a few days, call your doctor or ET nurse.

Juices like tomato and V-8 will come out exactly the same way they went in!

Keep an “emergency kit” with your pouch, wafer, skin care products, etc. in your purse at all times.

Laxatives are usually not necessary as prep for small bowel X-rays; clear liquids for 24 hours will normally clean out the small intestine adequately.

Mail off for all the free samples you can – you never know what new products you may come across.

Name your stoma if you wish!

Organize your supplies in a single & convenient location so you always know what you have on hand.

Pack ostomy supplies in carry-on baggage when flying.

Quiet down your stoma (for meetings, church services, etc.) by taking one Immodium A-D about 30 minutes beforehand.

Reduce your chance of leaks – change your appliance at least weekly or more often as the manufacturer suggests.

Share your experiences with others – especially new ostomy patients and those contemplating surgery.

Two-piece systems are great for “burping” to release excess gas.

Underwear can still be sexy with an ostomy – you don’t need to sacrifice form for function!

Visit or call your ET nurse as needed – they are there to help.

Wait at least 2 hours after eating before going to bed. You’ll be less likely to feel the need to get up and empty your pouch in the night.

eXamine your stoma and surrounding skin weekly for changes.

You are the one in control – not your ostomy.

Zest for life – what illness took away, your ostomy and good health can return to you!




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