Ostomy Network - talk to ostomates in your area


Home Ostomy Forum Ostomy Blogs Ostomy Events Ostomy Store
Ostomy Knowledge Ostomy Dictionary Ostomy Articles Useful Links Find Ostomates

       

 

About the Ostomy Community

Ostomy Network - MeetAnOstoMate.org

Go to MeetAnOstoMate.org


Popular Forum Topics

What's the best way of telling someone you have an ostomy?

Hi there, I need some advice please...I've been going to my local nightclub for 5 years, I guy who's also gone there all that time (and longer apparently) is suddenly showing an interest in me. He's very shy, quiet and hardly talks to anyone but his close mate, they're both bachelors, it was my new 'hairdo' (my wig since hair loss due to low dose chemo for my crohn's) that did it, they were lightheartedly arguing whether it was me or not! I started chatting to the quiet guy, I've only ever said ...


Views: 1129 Replies: 12

Ostomy diet

Is there such a thing as an ostomy diet? I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite. Last year I was in hospital with what they thought was a partial small bowel obstruction. My "diet" has been small amount of baby oatmeal and some coffee at breakfast: maybe cup of soup for lunch. Small amount of yogurt, jars of baby fruit. I tried to eat small amounts of well-cooked green beans with the carrots today. I've tried to dri...


Views: 512 Replies: 10

Is it possible to be regular with an ostomy?

Hello Everyone! Is it possible to become regular with an ostomy? My dr told me to drink Citrucel everynight to become regular. I find its all day long, Is it possible to train your colon?


Views: 727 Replies: 11

Recycling ostomy bags???

Has anyone ever heard of cleaning ostomy bags after use? I am all for recycling, but I am also concerned about the health risks.


Views: 904 Replies: 15

Disposing of an ostomy bag at a friend's house

I have an ileostomy and i like to use closed end pouches and change them twice a day. I can carry an Ostaway Bag (black, thick, zip-lock) with me and keep a fresh closed end ostomy bag with me in my pocket. Often when I am at someone's house i need to dispose of one bag and put on a fresh one. I really prefer using the closed-ended pouches and i know there isn't any smell if they are put inside the black, thick, Ostaway Zip-Lock Bag. My question is; do you think it is o.k. to throw this in s...


Views: 1273 Replies: 9

Naming my ostomy

I never thought of naming my stoma. I guess by now I would have to call it "old timer" as I have had it for 40 years now.....


Views: 575 Replies: 6

Collection of tips from people with an Ostomy >>


Visiting a Patient with a Temporary Ostomy - A Personal Reflection

from Regina (SK) Newsletter; via S Brevard (FL) Ostomy Newsletter

This article is provided to JDBS courtesy of Stillwater-Ponca City (OK) Ostomy Outlook and is Copyright by Stillwater-Ponca City (OK) Ostomy Outlook

While this page contains only a sampling of articles from the Stillwater-Ponca City newsletter, anyone who would like to receive the complete Ostomy Outlook newsletter electronically (in PDF format) may do so by emailing a request to the OstomyOK webmaster (who is also the Stillwater-Ponca City newsletter editor).


From Stillwater-Ponca City (OK) Ostomy Outlook May 2003:

As a certified visitor with the local ostomy chapter, I have had many occasions over the years to visit patients who have just undergone surgery that left them with a temporary ostomy. Usually a temporary ostomy is done on an emergency basis, as the result of a blockage or obstruction in the colon. This may be the result of diverticulitis, colon cancer, inflammatory bowel disease or Crohn's disease, and the result is a temporary ostomy to allow the bowel to heal. The intent is to reconnect the bowel at a later time, and many patients are told by the attending physician to expect to have an ostomy for anywhere from three to nine months.

My first thought as I headed off to visit a patient with a temporary ostomy was that this would be a piece of cake, and the visit would involve lots of questions about management of the ostomy. I also figured that the patient would be greatly relieved knowing they would not have to deal with an ostomy on a permanent basis. Boy, was I wrong!

This particular patient was angry beyond all belief, upset with what had happened to her and definitely not prepared to deal with anything as disfiguring as a colostomy. To be sure, she wasn't angry with me, but the medical profession as a whole suffered her wrath and it was quite evident that the nursing staff gave her a wide berth. She was NOT going to like this ostomy thing! Not having encountered this kind of reaction before, I wasn't exactly sure how to proceed, but I found myself listening to her frustrations and empathizing with her situation. This calmed her somewhat and she told me that I was the first person who had not treated lightly her fears about the ostomy. She felt people did not take her seriously because hers was only a temporary situation.

The visit actually went fairly well after that and although she was still angry with many things, I left feeling that she would manage her colostomy quite well in the short period of time she would have it. It impressed upon me that people with temporary ostomies struggle with the same fears and anxieties that all of us who have permanent ostomies do. In addition to this, because the surgery is done on an emergency basis, they have absolutely no time to prepare themselves for the eventual outcome, the ostomy.

Do I sound like an all-knowing and understanding saint?? Well, I don't feel like one on some of these visits. In general, I find most persons who have just had surgery resulting in a temporary ostomy to be very upset and unusually angry. They just hadn't expected this! I am sympathetic, as mentioned before, but the thought also crosses my mind, "Deal with it!" Recently, I paid a visit to a woman who, after her emergency surgery, asked me how I could tolerate having a permanent ostomy! At that moment it seemed bizarre that I should be counseling her when I am the one who has to live with this thing on a full-time basis. She could look forward to a reversal. On the other hand, hard as it may sound, her comment actually helped me and I didn't have to hesitate a second for the answer. I know I cope with it because I wouldn't be here if it weren't for my surgery for colorectal cancer. I was 37 at the time and I suppose I had every reason to be angry but I wanted so desperately to live. The surgery and colostomy gave me a second chance at life, for which I am grateful.

I would like to be able to remind some of the people who have to live with temporary ostomies that their surgery likely saved their lives too, and that a few months is really not such a long time to live with an ostomy. But I also have to remember how very frightening this surgery is and how it is still considered such an awful thing to have an ostomy. Despite our attempts to educate the public about the normal lives we lead, who among us wouldn't choose not to have an ostomy? So I internalize my thoughts and sympathize and try to make the patient feel better about coping with their new situation. But a question still lingers: Why do some people marvel at their good fortune while others retreat into anger and disgust? We humans are a complex lot.

 

 

     

Ostomy Forum - Ostomy - Colostomy - Ileostomy - Urostomy

© Copyright JDBS. All Rights Reserved.